Special Issue: Genetic testing in childhood / Guest Edited by Anneke Lucassen and Tara Clancy
1
Introduction
Anneke Lucassen and Tara Clancy
3-7
Predictive genetic testing in children: where are we now? An overview and a UK perspective
Anneke Lucassen and Jonathan Montgomery
9-14
A clinical perspective on ethical arguments around prenatal diagnosis and preimplantation genetic diagnosis for later onset inherited cancer predispositions
Tara Clancy
15-18
Genetic testing in children and young people
Michael Parker
19-22
What is at stake in the predictive genetic testing of children?
Angus Clarke
23-25
Are guidelines for genetic testing of children necessary?
Angela Fenwick
27-35
The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis
Rony E. Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson and John G. Rogers, et al.
37-42
Childhood genetic testing for familial cancer: should adoption make a difference?
Ainsley J. Newson and Samantha J. Leonard
43-50
Primary care providers’ willingness to recommend BRCA1/2 testing to adolescents
Suzanne C. O’Neill, Beth N. Peshkin, George Luta, Anisha Abraham and Leslie R. Walker, et al.
51-59
Health-related direct-to-consumer genetic testing: a review of companies’ policies with regard to genetic testing in minors
Pascal Borry, Heidi C. Howard, Karine Sénécal and Denise Avard
61-64
Predictive genetic testing in a young child: a case report
Gillian Crawford and Anneke Lucassen
65-69
Childhood predictive genetic testing for Li–Fraumeni syndrome
D. G. Evans, P. Lunt, T. Clancy and R. Eeles
71-74
Predictive testing for pre-malignancy as a prelude to adoption? An English case
Robert Wheeler
75-87
Genetic testing of children for familial cancers: a comparative legal perspective on consent, communication of information and confidentiality
Roy Gilbar
89-97
On the development of a decision support intervention for mothers undergoing BRCA1/2 cancer genetic testing regarding communicating test results to their children
Beth N. Peshkin, Tiffani A. DeMarco and Kenneth P. Tercyak