Objectives
To identify attitudes that influence patient help-seeking behavior and aspects of treatment that influence patient preferences
for management of depression.
Design
Three focus group discussions (two patient groups stratified by race and one professional group). Questions addressed experience
with depression, help-seeking behaviors, treatment preferences, and perceived barriers to mental health care.
Setting
Academic medical, center.
Patients/participants
Eight black patients and eight white patients with depression; seven health care professionals (four physicians and three
social workers).
Measurements and main results
Discussions were audiotaped, transcribed, and reviewed independently by two investigators to identify and group distinct comments
into categories with specific themes. Differences were adjudicated by a third investigator. Comments within categories were
then checked for relevance and consistency by a health services researcher and a psychiatrist. More than 90% of the 806 comments
could be grouped into one of 16 categories. Black patients raised more concerns than white patients regarding spirituality
and stigma. Patients made more comments than professionals regarding the impact of spirituality, social support systems, coping
strategies, life experiences, patient-provider relationships, and attributes of specific treatments. They discussed the role
these factors played in their helpseeking behavior and adherence to treatment.
Conclusions
In-depth focus group discussions with depressed patients can provide valuable and unique information about patient experiences
and concerns regarding treatment for depression. Clinicians, researchers, and policymakers need to incorporate the range of
factors identified by patients into their decision making for individuals with depression.
Key words depression - patient attitudes - patient preferences - patient-centered care
Presented at the 13th annual meeting of the Association for Health Services Research and the Foundation for Health Services
Research, Atlanta, Ga., June 9–11, 1996.
Supported by research grants from The Commonwealth Fund and the National Institute of Mental Health (U01-MH54443). Dr. Cooper-Patrick
is a Picker/Commonwealth Scholar. Address correspondence and reprint requests to Dr. Cooper-Patrick: Welch Center for Prevention,
Epidemiology, and Clinical Research, 2024 E. Monument St., Suite 2–600, Baltimore, MD 21205-2223.