Volume 17, Number 7, 531-539, DOI: 10.1046/j.1525-1497.2002.10734.x

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Acculturation of attitudes toward end-of-life care
A cross-cultural survey of Japanese Americans and Japanese

Shinji Matsumura, Seiji Bito, Honghu Liu, Katharine Kahn, Shunichi Fukuhara, Marjorie Kagawa-Singer and Neil Wenger

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Abstract

OBJECTIVE: Cross-cultural ethical conflicts are common. However, little is known about how and to what extent acculturation changes attitudes toward end-of-life care and advance care planning. We compared attitudes toward end-of-life care among Japanese Americans and Japanese in Japan.
DESIGN: Self-administered questionnaire in English and Japanese.
SETTING AND PARTICIPANTS: Community-based samples of Japanese Americans in Los Angeles and Japanese in Nagoya, Japan: 539 English-speaking Japanese Americans (EJA), 340 Japanese-speaking Japanese Americans (JJA), and 304 Japanese living in Japan (JJ).
MEASUREMENTS AND MAIN RESULTS: Few subjects (6% to 11%) had discussed end-of-life issues with physicians, while many (EJA, 40%; JJA, 55%; JJ, 54%) desired to do so. Most preferred group surrogate decision making (EJA, 75%; JJA, 57%; JJ, 69%). After adjustment for demographics and health status, desire for informing the patient of a terminal prognosis using words increased significantly with acculturation (EJA, odds ratio [OR] 8.85; 95% confidence interval, [95% CI] 5.4 to 14.3; JJA, OR 2.8; 95% CI 1.8 to 4.4; JJ, OR 1.0). EJA had more-positive attitudes toward forgoing care, advance care planning, and autonomous decision making.
CONCLUSION: Preference for disclosure, willingness to forgo care, and views of advance care planning shift toward western values as Japanese Americans acculturate. However, the desire for group decision making is preserved. Recognition of the variability and acculturation gradient of end-of-life attitudes among Japanese Americans may facilitate decision making and minimize conflicts. Group decision making should be an option for Japanese Americans.

Key words  cross-cultural comparison - acculturation - terminal care - advance directives - decision making

Presented at the annual meeting of the Society of General Internal Medicine, April 29, 1999, San Francisco, Calif.
This study was supported in part by a grant from the VA/UCLA/RAND Medical Treatment Effectiveness Program (MEDTEP) Center for Asians and Pacific Islanders that was funded by Agency for Health Care Policy Research (P50HS07370). Additional project support was provided by Pfizer Foundation Grants to Support Joint International Research Projects in Japan.

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